The joys and perils of adolescence, in traditional societies, the passage from childhood to adult
life is marked in a variety of ways but all of them recognise that the
young person has now to take on new duties and responsibilities, that process of transition is often
more complicated, because of the vast range of opportunities and choices
now available to young people.
There are, however, increasing
numbers of young people who face much greater challenges when making
this transition - those who have long-term health problems which they
will take with them as they grow up and become adults. There has been some spectacular
advances in medical
progress which has allowed many children to survive and become adults. These young people frequently have to negotiate
many more hurdles and obstacles than their peers when making plans and
decisions about further education, employment opportunities, mobility,
independence and relationships.
Their task is frequently made more
difficult than it needs to be, because health professionals do not
adequately plan and manage the one aspect of transition which is within
their control, the process of handover from childrens services to adult systems. All too often, there is an abrupt
transfer from one service to another . Some young people have difficulty in finding an interested and competent
service which is able and willing to provide continuity of medical care.
I think the importance of
a wider perspective that takes into account the many other aspects of
transition planning, which may be as important - and often as
important as health care, and in particular highlight current
thinking on the concept of 'person-centred planning'.
A few years before our daughter left school I listened to options that other families were taking up and (with the help of the internet ) searched on the web to see what was available out there ,and through this did find a placement for her.It is very difficult because you have to commit to your choice but you never know if it is fully going to work untill you start and sometimes it is hard to then start again.