Action for Children

Action for Children is the new face of N.C.H since 2008.
Our involvement with N.C.H (as it was then) was because of the "Butterfly Project",this was a service that was aimed at families of a "life limited child" ,it gave advice and support,but unfortunately for families now this service no longer exists.
We had a family worker who amongst other things did come for moral support to the school transition meetings with us and was a great mentor.
The group set up coffee mornings for families to meet and chat ,this was really useful and gave a parents view and advice about alsorts of issues.We also had social events such as "picnic teas" which were great fun for all the family and gave a much needed interactive time for other siblings from the families to meet and share experiences.The same theme will run through most of the organisations, that parents need to know that they are not alone .. others share their grieve and concerns for the future.
Below is a link to a pdf file about transition from the Action for Children website which I thought was very interesting.
http://www.actionforchildren.org.uk/our-services/disabled-children/transitioning-into-adultho